Here are some links to information about special educational needs and disabilities for parents: and carers:
SEND parenting courses in Surrey Courses for parents about Autism and ADHD.
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The Children and Young People's Emotional Wellbeing and Mental Health Service
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Surrey Educational Psychologist helpline
1-4pm every Wednesday
call 01483 517179
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Occupational Therapy Service Information and details of their helpline
You can contact the OT Helpline on Tuesday and Thursdays 2pm - 4pm on 01932 558 570 if you would like to discuss a concern about your child's daily living skills. An open referral is not required to access this service.
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The website contains resource packs, advice and information for parents
Advice sheets about how to help your child develop communication, everyday living skills, feeding, eating and drinking, motor skills
Here are some videos about understanding your child's sensory Processing needs:
1. Introduction 2. Sensory Beings 3. Sensory Thresholds 4. Senses 5. Sensory Strategies
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ADHD
SUPPORT GROUPS
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Surrey Positive Parenting Service Out of Hours ADHD Parenting Helpline 365 days a year 5pm-11pm
0300 222 5755
The Out of Hours ADHD parenting helpline is to provide advice and guidance to parents/carers who have a child with a diagnosis of ADHD or those children/young people who present with similar behaviours and who do not have a diagnosis of ADHD. For example: inattention, hyperactivity, impulsivity, low self-esteem.
The helpline workers provide a listening ear and support parents who are dealing with challenging situations with the home, when other professionals are not available during hours outside a working 9-5 day.
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The Positive Parenting Factor: Supporting parents who have children diagnosed with ADHD Surreypositiveparenting@barnardos.org.uk 01293 610689
ADHD Support Group (Telephone/e-mail support)
Contact: Jenny Missen Telephone: 0208 384 0936 E-Mail: missenj@aol.com
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NATIONAL SERVICES
Adders (Information on ADD and ADHD)
Promotes awareness to Attention Deficit/Hyperactivity Disorder and provides information and as much free practical help as they can to both adults and children, and their families.
Website: www.adders.org
ADDA (Attention Deficit Disorder Association)
The Attention Deficit Disorder Association (ADDA) is the world’s leading adult ADHD organization. We are an international non-profit – 501(c) – organization founded twenty-five years ago to help adults with Attention Deficit/Hyperactivity Disorder (ADHD) lead better lives. Since its inception, ADDA has become the source for information and resources exclusively for and about adult ADHD.
ADDA brings together scientific perspectives and the human experience to generate hope, awareness, empowerment and connections worldwide in the field of ADHD.
Website: www.add.org
ADDISS (ADD Information and Support Service)
Provides people-friendly information and resources about Attention Deficit Hyperactivity Disorder to anyone who needs assistance - parents, sufferers, teachers or health professionals.
Website: www.addiss.co.uk Telephone: 0208 906 9068
WEB-BASED INFORMATION
ADHD has a high profile in the media and there is an enormous amount of information about it on the Internet. While much of this is helpful, users should be aware that its accuracy and authenticity cannot be guaranteed, and some information may be out of date.
Useful web sites include:
https://www.nhs.uk/conditions/attention-deficit-hyperactivity-disorder-adhd/ includes downloadable information about ADHD and a short list of support groups.
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The web sites of medical organisations may also offer information for parents/carers that can be downloaded; one example is the Royal College of Psychiatrists at www.rcpsych.ac.uk .
National Institute for Clinical Excellence has a public domain; this includes a summary of its guidance on the treatment of ADHD with methylphenidate and very comprehensive document on diagnosis and treatment of ADHD www.nice.org.uk
www.additudemag.com – Web based parent information on ADHD. Includes link to ADDITUDE magazine.
www.add-vance.org web information for girls with ADHD
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit organization that improves the lives of people affected by ADHD through education, advocacy, and support. CHADD is in the forefront in creating and implementing programs and services in response to the needs of adults and families affected by ADHD through collaborative partnerships and advocacy, including training for parents and K-12 teachers, hosting educational webinars and workshops, being an informative clearinghouse for the latest evidence-based ADHD information, and providing information specialists to support the ADHD community. www.chadd.org
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AUSTIC SPECTRUM DISORDER
Websites
Information and resources for parents of young people with or exploring an ASD diagnosis (NAS) www.nassurreybranch.org
Booklet on ‘Supporting Individuals with Autism through Uncertain Times’ with various resources (e.g. social stories and charts; The UNC FPC Child Development Institute)
https://afirm.fpg.unc.edu/supporting-individuals-autism-through-uncertain-times
BRAAIN Be Ready ADHD ASD Information Network (Surrey based) www.braain.co.uk
‘Podcast - coronavirus and helping children with autism’ (Dr. Ann Ozsivadjian and Dr. Marianna Murin– ACAMH)- https://www.acamh.org/podcasts/cornavirus-autism-a-parents-guide/
HELPLINES
National Autistic Society Helpline (COVID-19 hours: Mon to Fri, 10am - 3pm): 0808 800 4104
https://www.autism.org.uk/what-we-do/help-and-support/helpline
LOCAL SUPPORT GROUPS
The National Autistic Society’s Surrey Branch is a group which provides support to parents in Surrey of children with Autism, including workshops, parent support groups, advice and information. Information and resources for parents of young people with or exploring an ASD diagnosis.
www.nassurreybranch.org/
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Appeer Surrey support group for girls with ASD and their families
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SPECIFIC LEARNING DIFFICULTIES
Information for parents:
https://www.nessy.com/uk/parents/dyslexia-information/
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SPEECH AND LANGUAGE
Speech Link Parent information, games, blogs and top tips
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The Communication Trust Resources for Parents
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